Saturday, September 29, 2012
1:08 PM | Posted by Jenny | Edit Post
Well all that glue in her hair and a 24 hour EEG gave us a diagnosis....of Lennox-Gastaut Syndrome, which to quote is a rare and "devastating" form of childhood epilepsy with a poor prognosis that leads to regression, mental retardation, multiple types of difficult to treat seizures, behavioral disturbances....and the list goes on. When we got home from the hospital Adriana came up to me and said, "You know what song is stuck in my head? 'Do not worry about tomorrow....tomorrow will worry about itself!" What a timely reminder that all we have is right now and we can choose to believe the best and use our will to rejoice, give thanks, and be at peace with the fact that we don't have to understand everything.
God is bigger than any diagnosis, label, or circumstance after all. And Esther is more than her multiple seizures and constant care. She has already taught us so much....how to slow down, be extremely flexible with "our plans," and how to appreciate little things like big hugs, little grunts of delight, and a greater appreciation for all LIFE. I can't go anywhere these days without seeing kiddos with Down Syndrome, Cerebral Palsy, etc. In a world where intelligence and beauty are the measure of worth, it takes a different lens to see Jesus in a grunting child covered with drool...but Christ said it's in "the least of these" where He often hides Himself. I love His hide and seek games because He always lets me find Him! He has diagnosed us as His "beloved" which is my favorite label of all. Let your Beloved-ness in Christ trump every other name that may have been slapped on you through the years. Your Great Physician is also your Bridegroom King and He is an incurable romantic!